Living with Dementia & Care Partners
Resources and tools to support you on your journey
Books & Guides
The Deer Self-Management Guidebook: An easy-to-follow guide that helps you understand what dementia is, plan health care and daily life strategies, manage change and uncertainty, and build supportive connections with family and community.
DAA Pathways to Well-Being With Dementia: This manual focuses on everyday strategies and encouragement for navigating life after a diagnosis.
Being Mortal: Medicine and What Matters in the End by Atul Gawande A deeply human book with a focus on understanding what truly matters at the end of life and how patients and families can have better conversations and care plans.
Dementia Beyond Drugs: Changing the Culture of Care by Dr. G. Allen Power This book highlights compassion and person-centered approaches over reliance on medications. Filled with real examples, it’s helpful for caregivers and family members looking for meaningful ways to improve daily life.
Beginners Guide to the End: Practical Advice for Living Life and Facing Death by B.J. Miller and Shoshana Berger A reflective exploration of how human identity, memory, and meaning are shaped through the stories we tell—individually and collectively.
Toolkits & Support Resources
UCSF Brain Health Toolkit: A free online tool from UCSF designed to help people understand what cognitive aging changes are normal and when to talk to a clinician. It also offers tips on supporting brain health through lifestyle habits and on preparing questions to bring to medical appointments.
Living Well with Dementia Toolkit — Ariadne Labs: Provides tools (like conversation guides, action plans, and support mapping) to help you navigate daily challenges, plan for future changes, and build a reliable support structure — all with attention to what matters most to the individual.
Community & Advocacy
Dementia Action Alliance (DAA): A nonprofit led by and for people living with dementia and care partners. DAA offers advocacy, education, shared stories, practical guides, discussion groups, and resources aimed at reducing stigma and supporting quality of life at every stage of the dementia journey.
Daughterhood: A nonprofit community that offers opportunities to connect with fellow caregivers through free virtual group circles and additional helpful resources.
Contact us
Do you have resources to share? Are you looking for additional help or support? Reach out and we’ll get back to you!